Tuesday, January 31, 2012
It's feeding tube awareness week! and although i dont have one A.I did have 2 at one point when i was admitted and B. So many of my friends do!!
Imagine if you woke up morning and couldn't eat without extreme pain and throwing up?
Imagine getting a tube pushed down your nose.
Imagine getting a tube placed into your stomach.
Imagine Never eating again.
So many of my friends deal with this. When i had my 2 NGs it wasnt *that* big deal because One was for Go-lytly and the other for Venting so it was only for a few days. But my friends have had theres for years. YEARS!!!
Where your only nutrion is Baby type formula through a bag that pumps into your stomach.
Sometimes people can't even handle Feeds so they have a Line placed into a major artery for TPN and/or Fluids.
It's time to make awareness for Feeding tubes and the reasons to get them Including Gastroparesis,Crohn's,Anoxreia(Eating disorders in general),Malnutrion,Premeture birth, cancer the lists goes on and on.
Please watch this video:
And "Like" this facebook page and show your suport!!
PS: I love my tubie friends XD
Monday, January 30, 2012
Sunday, January 29, 2012
by Michelle Watt
Feel free to share this, post it to your blog, or whatever you think is right.
It is very difficult to write something as blunt and honest as this will be, without unintentionally upsetting or insulting someone. I would like to take this time and let it be known that my intentions of writing this are only for the best, and by no means do I intend to hurt anyone in anyway.
It does not matter what the name(s) of my disorder(s) may be. What matters is not the diagnosis, but the effects of living with a serious, chronic health condition.
First of all, an important term to know is "chronic." Chronic does not mean occasionally; nor does it mean often. It means always; never-ending; and relentless. There is no escape from an illness that is chronic, and oftentimes a chronic illness means a lifelong illness. That one speaks for itself, I think.
There is a different vocabulary spoken by those of us who live with such conditions.
When we say we are sick, it may mean a number of things. Most often, it means we are struggling with a flare-up, a relapse, or having a bad day in general. Then again, occasionally, sick means we've actually caught a virus like a cold or a flu; the kind that actually leaves us rejoicing slightly because it means we have NORMAL, treatable symptoms. Yes, that is comically pathetic, we know.
When we say we are going to the doctor, it's probably not for a check-up. Most patients with a chronic illness haven't had a regular check-up for years and years. Why? Well, when you go to the doctor multiple times a week, they have a pretty good idea on what your physical status is. Also, doctor refers to specialist ninety percent of the time. the only time we see our general physicians is when we are required to get a referral through them, or if we run into them on the street.
Next, there are the questions that friends, family members, classmates, teachers, co-workers, and even strangers will ask. We love you and appreciate your kinds, concern, and perhaps even your curiosity, but what we reply with is not always what we want to say.
1.) Are you sick?
What we say: Yes.
What we want to say: From a scientific point of view I'm always sick. (Refer to definition of 'chronic.') I might not be sick how you define sick, but yes. Yes I am.
2.) Are you feeling better?
What we say: Yes/No.
What we really want to say: Maybe compared to yesterday or five minutes ago, but I will never "'feel better.' (Refer to the definition of 'chronic')
3.) What's wrong?
What we say: I'm just not feeling well is all.
What we really want to say: Honey, I've been seeing doctors since the age of two and they still don't know what's wrong.
(A subtopic of this question is, "What happened?" This is always hard to answer for those of us who may be in wheelchairs, using crutches, braces/orthotics, and so on.You see, it's very difficult to explain why, for example, my joints dislocate for seemingly no reason, or why I'm limping or unable to move at all. Typically I'll say something like, "I was born this way," or "Oh, I'm fine," because it's easier than saying, "I have a number of chronic illness and physical disadvantages caused by a genetic medical condition that causes my connective tissue to be faulty, and connective tissue makes up the majority of your body, so yeah.")
4.) Are you contagious?
What we say: (Politely) No, of course not!
What we really want to say: Violence is not the answer...violence is not the answer...violence is not the answer...
One of the most important things to know about chronic illnesses is the whole pity thing:
No, chronic pain, discomfort, or dysfunction is not fair. It never was, and it never will be. We know this. You need to know this. Do not make pity noises or faces at someone who is dealing with a chronic illness. Don’t say “I wish it was me going through this,” or “I’m so sorry!” Yeah, we know. But the truth is, you don’t want to be going through this, and how can you be sorry if it’s not your fault? It’s no one’s fault. Don’t apologize.
From those of us who live with chronic and invisible illnesses….
You need to believe us.It will seem absolutely unreal to imagine going through life the way we do. Life made up of neverending pain, discomfort, medicine, doctors, needles, hospitals… it goes on and on. We’ve lived our lives like this for so long and it still seems unreal on some days. And yet for the most part, we look perfectly normal on the outside.
Because of the rare few who fake having a chronic illness, we are put in a very difficult situation – if you can’t see it, how do you know it’s there? Nobody can see chronic pain. We can see what that pain does, but we cannot see what it looks like. There are no broken bones or open wounds
You know, I can’t even put into words how it feels to be called on lying about something like this. And we all go through it. There is always going to be someone who thinks we are faking, imagining, exaggerating, or even taking advantage of our illness to manipulate others.
To those who think that, the only thing we can (nicely) say is:
You poor, ignorant, fools.
Open your heart. Open your mind. We all have our challenges, and no one’s are greater than another’s. Accept who you are, and who others are. Appreciate everything you have, because it makes you, you.
And most importantly, love.
A #2 pencil and a dream can take you anywhere.~Joyce Meyers
“People haven't always been there for me but music always has.”~Taylor swift
Ansi sera, Groigne qui groigne(Grumble all you like,this is how it's going to be)~Anne Boleyn
“If you enter this world knowing you are loved and you leave this world knowing the same, then everything that happens in between can be dealt with.” ~Michael jackson
I will praise God's name in song and glorify him with thanksgiving. Psalm 69:30
"Kind words can be short and easy to speak, but their echoes are truly endless." Mother Teresa
"I believe the reason God gave some of us CF is because we are his favorite and he wants us home sooner."~Spencer Riddle
An eye for an eye only ends up making the whole world blind.~Mahatma Gandhi
And pretty much this whole poem:
Friday, January 27, 2012
DSI case with 3 games,stylus and DSI
tons of CDs
My sock frog
annnnd Homework. :)
Thursday, January 26, 2012
Wednesday, January 25, 2012
Tuesday, January 24, 2012
Monday, January 23, 2012
Sunday, January 22, 2012
Saturday, January 21, 2012
Friday, January 20, 2012
Thursday, January 19, 2012
Maybe go to John's incredibles? Have pizza..Play video games..ride some rides. Yeah sounds good.
Maybe another would just be playing video games. :P video games are fun..
I am now done with this interesting post that I just don't know how to respond too..Just remember video games are fun :D
Wednesday, January 18, 2012
Tuesday, January 17, 2012
"Remember yet?" I asked,although I knew the answer.
Matt's Face scrunched up in a scowl,"I'm-i'm sorry." I threw myself against the brown leather chair,Looking into his Chocolate brown eyes.
"I'm sorry,I want to remember. I really do." He said quietly. Tears rolled down my face,and i got up to leave the room. "Goodbye Matt." I walked away from my only hope in this chaotic world.
The dreaded events played over in my mind as i walked down the hospital hall for the last time.
Matt Hitting the tree on his way home from my house,him facing death but coming back ,then the worst event..Him forgetting everything in the last 3 years. Including our 2 year relationship.
I sighed as I plopped down on a bench in the lobby and cried.
2 years later.
Seeing him again made my heart leap. "matt!" I ran into his arms. I could stay in his arms forever if it wasnt for the tug on my shirt.
"oh,Matt this is Kelly." I said as i nudged my daughter to him.
He flashed his famous smile that made my whole world stop,"Hi there!" Kelly said then running off to play in the sandbox.
He turned to me quietly" She look's just like you.."
Matt looked away,"I-i've missed you."
"Yeah? How can you miss something you don't even remember." I muttered,as bitter tears came to my eyes.
"I can. i can remember it all. We had our first date on the Pier,eating nachos and gulping down Mountain dew. right?" He said excitedly,but still nervous.
I breathed,"Please matt..The doctors said it wasn't possible."
"But please,liz. I can,I can prove it to you." He face scrunched up in that scowl that i left 2 years ago.
I grabbed Kelly and carried her to my car. "i'm so sorry matt,but I-I'm not sure if i could do it..I love you though."
I left the man i loved with tears streaming down his face..
10 Years later..
I turned the manilla evenlope in my hands as the Front desk secetary paged him.
He came out of the elevator with the same brown wavy hair I have.
"matt? Matthew Adkins right?" I said,my voice shaking.
"yeah." I ran up to him and hugged him.
"Dad!" I backed away and handed him the evenlope,"I'm Kelly. This is from my mom."
I saw his face transform from confusion to pain to just tears spilling down while He read my mothers letter;
If you are reading this it mean I am gone. I know i left a lot of pain when i last saw you,but I couldn't let you deal with my death. You see,I was diagnosed with a rare brain condition shortly after Kelly was born. I was given just a few short years and When we met again I promised myself that Our love was forgotten. But truth is,It wasnt. Kelly will live with her Aunt untill she is 13,after that It is your choice If you would like to take her in. Her father left before she was born,But i have always said you are her father. Please forgive me for my choices,poor or not.
Day 1 - Your Favorite Song
Day 2 - Your Favorite Movie
Day 3 - Your idea of the perfect first date
Day 4 - Your favorite photograph of your best friend(s)
Day 5 - Talk about your pets
Day 6 - A photo of an animal you'd love to keep as a pet
Day 7 - Your dream wedding
Day 8 - A song to match your mood
Day 9 - A photo of the item you last purchased
Day 10 - A photo of your favorite place to eat
Day 11 - What's in your make-up bag/purse
Day 12 - Your current relationship and if single discuss how single life is (this ought to be interesting)
Day 13 - A few of your favorite quotes, mottos, or versus
Day 14 - A TV show (or shows) you're currently addicted to
Day 15 - Something you don't leave the house without
Day 16 - Describe a passion you have
Day 17 - How you hope your future will be like
Day 18 - Five things that irritate you
Day 19 - Your reflection in the mirror
Day 20 - The meaning behind your blog name
Day 21 - A photo of something that makes you happy
Day 22 - A letter to someone who has hurt or OR made you happy recently
Day 23 - 15 Facts about you
Day 24 - A photo of something that means a lot to you
Day 25 - 5 of your favorite movies/books
Day 26 - A photo of somewhere you want to go
Day 27 - What kind of person attracts you?
Day 28 - In this past month, what have you learned?
Day 29 - Something you could never get tired of doing
Day 30 - A photo graph of yourself to day plus three good things that have happened within the last 30 days.
Day One! Favorite song:
I love this song at the moment,It's for The Hunger Games movie and if you ever read the books I'm sure you could agree this song Is like PERFECT! :D Best song ever :)
Sunday, January 1, 2012
2011 was quite a year...so many good things so many "bad." :S Now i shall survive 2012!
“We will open the book. Its pages are blank. We are going to put words on them ourselves. The book is called Opportunity and its first chapter is New Year's Day.”