Beads of hope

I decided i wanted to do a "crohn's and CF" type of the beads of hope or whatever thing. basically you get the beads for the tests you went through and put them on a string or a in a jar. =)

(i'll post a sperate one for CF laterz. :D)


Beige - Scopes(endo and colon)
White - Antibiotic rounds
Blue - Clinic Visits
Magenta - Emergency Visit; Ambulance/Air-Ambulance
Brown - Steroid rounds
Purple - Infusions(Each time)
Yellow - Inpatient Admission (each night in the hospital)
Lime - Humira shots,vitimin shots
Orange - Line Placement/Removal; Port/Hickman/PICC line
grey - Challenges to overcome; Medication or Mobility
Black - Pokes; IVs, injections; Insuflon placement; Port access Light Green - Tests/Scans; CT; MRI; x-ray; ECHO;EKG; ultrasound(
Red - Transfusions (per bag of blood/platelets)
Teal - Care Team Visit; PT; OT; MT (per visit)
Baby pink - Acts of Courage; public speaking; hosting a benefit; etc
Neon pink- Feeding tubes,TPN.
Clear-surgery(one for each surgery)

Others:(these can be shapes and you choose them!) Child Life/Psychology
Research Participation
Music Therapy School Re-Entry

    CF beades of hopes :) 

Beige-PFTs

White-IV antibiotics 

Blue-Clinic visits

Magenta - Emergency Visit; Ambulance/Air-Ambulance

Brown - Inhalers,breathing treatments and oxygen.

 Yellow - Inpatient Admission (each night in the hospital)

Orange - Line Placement/Removal; Port/Hickman/PICC line 

grey - Challenges to overcome; Medication or Mobility 

Black - Pokes; IVs, injections; Insuflon placement; Port access Light Green - Tests/Scans; CT; MRI; x-ray; ECHO;EKG; ultrasound(

  Teal - Care Team Visit; PT; OT; MT (per visit)

Baby pink - Acts of Courage; public speaking; hosting a benefit; etc 

Neon Pink-Feeding tubes,TPN etc.

 Clear-surgery(one for each surgery)

Others:(these can be shapes and you choose them!) Child Life/Psychology
Research Participation
Music Therapy School Re-Entry

 Transplant